Hi! I am also a LT survivor..had OC 3x..first at 22 yrs old(1994) , last time at 26.i had a doctor originally who was awful. I sued him for malpractice & won-but nothing could make up for what pain this man has caused in my life I am now 43 & dealing w the long term side effects. I have all Dental implants in my mouth..have done over 100 HBO..have always had issues speaking but recently my palate began shrinking & it has caused a very nasal sound to my voice. It is beyond awful. People now ask me if I am deaf. I am barely understandable. The swallowing & tongue movement is also a huge issue. I gave a diet of about 10 things that I eat. I am in therapy but at this point in my life I feel like I have nothing left to give. I have fought so much & it just feels like "enough Is enough".. I hate to complain bc I should be grateful, But at this point, I'm just very sad & tired of living like this. I dream of waking up with a normal sounding voice. And the mucous is a problem as well. If anyone has something positive I'm all ears!! Thanks!!


Diagnosed 1st time at 21yrs old SCC stage IV recurred at 22 partial glossectomy&radical neck dissection-clear
Recurred at 26 surgery-hemi+graph30 radiation, peg tube(1998-out in 99)
Over 100 HBO, vocal cord nodules,
Been fighting cancer & related symptoms for most of adult life-since 1994