 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Great news, Gary.
Ionizing radiation is a risk factor for MGUS as well. It was published in Blood magazine back in 2009. Likewise for MDS. My elevated calcium levels led to more studies for me back to 2009. The possibilities from late effects of radiation are astounding.
One of the difficulties after radiation, is finding anyone that is well-versed on the "syndrome" side of the issues versus looking for a prevailing disease. Almost any neurological, neuromuscular, endocrine and blood disorder has some similarities to one who doesn't specialize in cancer aftercare. Radiation doesn't cause those diseases as much as presenting as a random and broad set of symptoms to manage. It's the randomness that prevents anyone from standardizing treatment protocols.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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