This thread is both encouraging and terrifying. I'm still working on swallow recovery, though I am eating fully by mouth these days ... and I have to say, as much as I sometimes choke, I've actually wondered if swallowing liquid badly was going to cause me some sort of pneumonia. Good to know it's something I should look out for. I've also got a good doc, I just posted in another forum, he caught that my thyroid is all out of whack, which had NOT crossed my mind as part of recovery. (I swear it's still chemo brain...)

Still alive is good ... Thriving is better.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery