Heidi, no matter how hard you try to guess what's ahead, the possibilities are overwhelming. Out of the huge pool of "things" that might happen, only a handful will. It's been easier for me to just shut it out and deal with it as it happens.

I know I keep saying this, but deep restorative sleep is very critical for your well being. If you aren't sleeping often, it's time to get aggressive. One sleepless night a week is too many.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023