 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Debbie,
I am really sorry to hear the news of your husband. In many ways, your job will be the toughest. Cindy is just a step ahead of you and I am sure she can coach you along. The whirlwind you mention will not let up for a while. Are you buys going to a comprehensive cancer center? It is important to keep things moving but also worth finding the absolute best possible care as you may only get one chance at battling this beast. Don't feel you have to rush into something until you have confidence you are taking the best course possible. Know your options, arm yourself with knowledge. This site has about everything you need to know or a way to find it.
Wishing you the best.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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