Debbie,

Here is what I did. It helped quite a bit.

Get a notebook, like Dave said, take lots of notes. Write down everything. If the doc is going too fast, ask him to slow down so you get everything. I taped all of the docs cards in the front cover of the notebook so I would have all their phone numbers in one place.

Don't be afraid of second opinions. They are good to have.

Push the docs for all test results. Don't let them tell you it will be a week or so.

We went through 2 months of that before we went to a different doctor and found out the results in 4 days.

Read the past posts here on the website. I found most of the weapons I have needed in this fight here on this website. These folks are incredible.

Mostly the best thing you can do is make the committment to see this thing through and stick to it. It will get more difficult to do as you move through the process. We are at the hardest it has been so far right now and I have struggled everyday with how to help my husband.

What I have found is that this battle will take the both of you together to weather.

And what Dave said was very important. Go to all of the doctor's appointments. Don't be afraid to ask questions. And don't forget to write down the answers.

Make a list of questions before you go. Sometimes they are pumping so much information into you that you will forget to ask that one question you really needed to know.

Take things one step at a time. There are going to be many things you will learn as you go and if you have any questions that you just can't find an answer to, ask it here.

You are likely to get many good answers.

I hope this helps a little.

Cindy