Hey Cheryl!! The food is for the caregivers! The caregivers will make soupy, saucy meals on the side for me! I'm depending mostly on my feeding tube, and will eat as much as I can on those for as long as I can. This has been a slow process for me. I don't want to admit this but I barely eat now and that's why I got the peg early. I really do try and I'm getting better, but I think I'm just too depressed and I can not get that food down. I've read about the 2500 calories, but my stomach feels like it is going to explode! I'm only up to about 1700 per day and am confident I will get there. There is water counted in my formula and I drink water orally too. In two days my husband and I fly out to drop our son off at college. I'm guilt ridden that I'm not the happy go lucky mom I should be for him. I'm usually a very tough person, however the upcoming radiation has made me crack. But...just getting it out here and the kind responses, plus the few private messages have really been so encouraging. It's comforting to know, when I start going thru the physically painful season, I will have some great people here to keep me going. (Plus my family and friends of course...tho I have warned them please do not ask me if I'm feeling better today!)
Nancy (53 at dx) Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs 7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo. 5/29/13 - Found primary 7/3/13 - TORS 7/8/13 - Emergency Surgery/Blood vessel burst in throat 8/9/13 - Peg in 9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck 10/14/13 - Radiation ended! 11/12/13 - PEG out!
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