 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Do you have friends and family to help you get thru this? If not try to write down anyone who has offered to help you. Tell them when the time comes you will let them know. I went thru this without a caregiver and I suffered greatly. My biggest mistake was to be so tired I wouldnt set up the feeding tube, I would just stay in bed and sleep. This caused me to end up hospitalized a couple times for malnutrition and dehydration. I would hate to see someone else go thru this without someone to help them. Dont be too proud to ask people to help you. I know its not easy to ask for help but dont be shy, people really do want to help but they just dont know what to do.
Best wishes!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
