Don is correct, Nancy. OCF is dedicated to providing correct scientifically proven medical info. If anyone feels the need to discuss alternative treatments there are other websites for those types of things. On this site someone could be reading about something that is unproven and could take it as OCF supports that treatment, they could try it and have some pretty serious consequences. Oral cancer isnt something to fool around with, it has almost a 50% survival rate at the 5 year mark. Trying out different unproven treatments could delay the start of conventional, proven medical attention which would make OC much harder to treat. Im sorry, I do not mean to hijack your thread! I wanted to explain about the dangers of alternative treatments and why they do not belong here on the forum.

Don was also correct with how to post. Its ok to continue here with general things. Specific questions probably should go under "Currently in Treatment" or "Medications, Treatments, Procedures" depending on what your question is.

Please try your very best to bulk up a little. Chocolate milk is very high in calories. Drinking 3 pints a day extra would increase your intake by 1200 calories. I would also suggest boost very high calorie. That has 560 calories per 8oz container. If you can add 3 of those to your daily diet your may be able to gain a couple pounds. I know its not easy but it probably will get harder down the road. I hope you are one of the lucky ones who sail right thru. Some people are not affected as dramatically as others with their treatments and seem to have a much easier time than the majority of patients.

Try to line up some helpers. If you havent lined up drivers, try to remember everyone who offered assistance and let them know when the time comes you will call on them. The American Cancer Society can help with drivers. I try to drive someone at least once a month to their appointments.

Best wishes with everything!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile