Scott,

Hello, my husband also has Nasopharyngeal Cancer that was diagnosed in October 2001. Boy can we tell you a book full of stuff. Do you mind telling me how ald are you? My husband was 33. He is a white male which is very rare for him to have this. It is common in Asian decendants. After the biopsy the had a port and peg tube put in. Do you have that? He defintely needed these two things. He was very sick from the chemo and was put in the hospital both times. They gave him a chemo pack that was plugged into his port for 10 days at a time twice. The radiation burned him very badley enough to that it closed his throat completely for 18 months. Has your cancer spread to the lymph nodes? He sat at home and watched Emeril on Food Network and cooked for me and our kids even though he couldn't eat. Then he finally had to go to another surgeon in Nashville, TN who opened his throat up. He still gets it opened periodically. He has dry mouth and gluey substance from the saliva glands being dried up from radiation. He constantly carries around a water bottle. The cancer did come back at the two year mark. It was right above the line where they stopped the radiation. They said a cancer cell was laying dormant for two years and started to grown. He found this out because he developed double vision and he is now in the clivis bone near the brain stem. He then did a CPK Radiosurgery. Then it came back and he is now on his 3rd round of chemo and radiation. Please write to me if you need any advice. We have been down a rough road but he has been a big trooper through this. I wish you the best Scott.

Paula