I apologize for anything that sounds vague. I promise, it is just a reflection of what they tell me.

Yes, they were arguing my margins, but the surgeon is pretty confident and I do trust him. The tumor was at the very back of what they still consider the front half of the tongue, yet another area where I am borderline.

The rads would be tongue and neck, I believe, and just the one side.

The surgery would be 'modified neck dissection' which I gather means he plans to spare damage where possible.

And aside from having HPV virus, I don't have any known risk factors like smoking. I do think the extreme nausea caused by my panic disorder no doubt set up some damage though. I don't see how it couldn't, since I tgrew up nonstop for a few years.

I think that covers the questions y'all asked. I really appreciate the information and kindness you've given!

Kristen


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery