Hi Kirsten

Such a tricky thing to deal with. Mine had spread to my right neck nodes and they picked up maybe 4-5 on scans (ultrasound and CT) so did a right ND. Turned out there were 9 if them so those scans obviously are that great in detecting them. I'm getting rads and chemo now to zap whatever's left but have also been given the all clear by a PET CT scan now too which is the best for picking up any small malignancies. Mine was HPV+ and BOT.

In your shoes I'd definitely do radiation since it zaps the microscopic bits and ask a lot more questions. Have you had a Pet scan?

Good luck in this difficult decision.

Mel.


2013 - 39yr old female, DX BOT SCC Stage IVA (T1N2bM0) HPV+
28 May 13 - Pharangoscopy & tongue biopsy
29 May 13 - BOT Surgery & right ND (lvls 2-5)
31 May 13 - Hemorrhage, emergency trach, critical care
BOT clr mgns, 9/67 nodes & extracapsular extension
Finished 30 rads & chemo (cisplatin) stopped after 1 round due to hearing loss
May 2015 - left supraclavicular swollen lymph node & area - CT planned 9 May