That's the thing, both tumor boards agreed something should probably be done but were divided on which route. And yeah, I do not quite get the lymph node surgery, I should question the doc about that again to see what I am missing. Anyway, apparently I hit a lot of iffy issues . . .size of tumor, debate on margin, HPV+ but no risk factors for having acquired it, stuff like that. So they don't quite know what to do with me. That happens a lot in my life, I am used to being odd, but it has never been a life-or-death issue before.

We are considering a third opinion too, but I expect it will be the same.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery