Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,294 Likes: 1 | Kristen,
You sound like you have a good rapport with your medical team and tumor board. What did the tumor board recommend? Generally, the principle I was told was to hit it hard the first time, you do want to minimize every chance of this coming back.
Then again, it is not entirely clear what happened the first go around. If you had a small tumor on your tongue and that was full removed with clear margins, then maybe there is a good chance it has been removed.
If nothing shows neoplastic activity in the lymph then why go there? Seems like a bit of a hunting expedition.
Radiation is no walk in the picnic by any means but it would make sense to radiate the area where the tongue tumor was removed as that would likely be the highest chance of ensuring no cancer lives on.
Doing nothing did not seem like a hot idea so that means everyone has concerns something may be still lingering around, just not sure what the best way to kill it off is.
best to you. don
Don Male, 1955 Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4
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