Hi, glad to see you posting again. I can't believe how when I was gone on the 2 vacations I come back and there are so many new members with cancer.

I see you mentioned having problems with breathing during treatment. Did they ever check you for sleep apnea. I know Jeff's came on as a result of the swelling and even though the swelling is gone he still sleeps with the cervical collar around his neck and eventually puts the CPAP machine on. At least now he often waits so we can at least cuddle for awhile till I usually wake him up and tell him he's not breathing at put the machine on. I really resented the machine in the beginning, it totally ruined going to bed together at night. Do you ever feel like you are not breathing exactly right even now?

I see you are in a study for rare cancer. What type do you have that is rare. Jeff's is so rare less than 50 cases. I called out to Sloan Kettering in NY this week just trying to get some info on Jeff's cancer since I know they have treated 2 people with it that didn't make it. Was wondering about the chemo after rads to help reoccurrence.

Today it actually was in the 60's, we had a low of 10 this week and still have lots of snow. 70 for tomorrow so hopefully more melts. I see we had a drift 2 feet deep on the side of the garage still. Such a crazy spring, I want summer and am anxious to get my garden in.

How are you really feeling? Did this second time kick you more? Hope all continues to improve, you are so young to be dealing with it. Take care. Terri


Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.