 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi Seth! it's good to be stable. That is what I tell people when they ask me how John is doing.
John occasionally has pleural pain too. There is one lesion in his pleura. But since he is a potter, it can also be caused by his poor posture when potting. It is really hard to tease out. In any case, he does back exercises given to him by the physiotherapist and takes a couple of Tylenol when it is bad. Like you, so far it seems to work.
He is going in for his fourth dose next week. That will be followed by CT scan the next day and a lung biopsy at the end of the week.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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