Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi Tower, Me again. You will also notice that I had a what they called a 'new occurence' 4 years later that involved my larynx. A tiny tumor at the edge of of the opening of the esaphageal opening. It was hidden in a fold of tissue so they were unable to diagnose it even with CT scan even though I was complaining of voice change and occasional pain. Had they put me under anethesia so they could have looked throughly, they would have seen it sooner and maybe I wouldn't have had to have the laryngectomy. I had had symptoms for 5 months but then I had been healthy for 4 years. I see Drs every 3 months, dentist and perio other months.
Whatever, I still alive, working a full time job and trying to manage two 90 year old parents in Florida. I survived this twice and plan to do it again.
Email me if you have specific questions.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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