I am overwhelmed by all the helpful responses. Thank you all - what a great board this is.
nancyt I am really fortunate to have 2 sisters in Toronto, as well as my parents, so at least I will have some family to lean on.
Eileen you must have known how much I would have needed to hear from someone whose diagnosis closely parallels mine.
My ENT had in fact recommended a PET, but the oncologist in Toronto decided against. Apparently it is still a controversial test (at least in Canada). He was very familiar with it (they have a machine at the hospital in Toronto)
and seemed to be speaking from a good knowledge base.
I have not had a chance to discuss my CT results
with the ENT yet. Was supposed to see him today, but Hurricane Ivan conspired to pospone my appointment.
The only area of possible concern (as far as I can interpret) is "an area of soft tissue assymetry in the larynx anteriorly at the glottic level", which the report says is "of uncertain significance". I am keeping my fingers crossed that it is not significant.
Kirk Georgia, I had not really considered Miami initially, but if Toronto falls through (see Mark's comments)I may well be contacting you. I do have some contacts there (old friends), one of whom is a doctor. Also, my ENT is US trained and may also have some contacts. The downside is the cost, as my medical cover through my work is not very extensive, and the lack of family support.
Uptown, thanks for your welcome. I'm so pleased to now be a member of the "club nobody wants to join".
Best,
tower