Might I suggest that another possible issue often overlooked is the tumour itself? AND the damage it leaves behind when treatment is successful? Alex complained of a "shelf" where food was getting stuck but it could easily have been palsy of that section of his swallowing mechanism which I imagine would give that sensation.

Alex's dysphasia was apparent BEFORE radiation and the almost exclusive use of his PEG was required at least 2 months prior. I don't quite remember, but I THINK the first swallow test showing that Alex should not be taking anything orally was also before radiation.

Alex received his PEG a few days after diagnosis (just in case), needed it almost immediately after 1st chemo round and actually started using it properly just before 3rd chemo round. He had it removed in Aug(?) 2011 which was 3 months after he really needed it and approx 18 months since it was inserted. He continues to battle and is essentially on a liquid only diet although he tries every day with "lumps".

Despite that 1st swallow test showing that he should not take anything orally, he drank sips of water, beer and coffee throughout. He choked a lot. He continues to choke a bit.


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight