OP Contributing Member (25+ posts) Joined: Dec 2012 Posts: 26 | Thanks all, My epiglottis "seems" to work. The Barium swallow films show the barium passing the epiglottis and puddling at the top of the esophagus which does not open. My "adam's apple seems to move up and down while swallowing which is another good sign in my mind. If I take more than a teaspoon of water and try to swallow I will start coughing to prevent aspiration. In smaller amounts the water just regurgitates
If the therapist, who has been helpful and considerate, wants me to be relentless, I can do that. She just gave me the exercises but was not clear on how often and how long I should do them. I did, despite my best efforts, catch a winter cold and the cough and sinus drainage is not helpful, but in time this will pass. I meet with all the docs and therapist in the next couple of weeks and I will hopefully get some good direction.
In the meantime I appreciate all your comments. They are encouraging and I wish you all the very best in your recovery process.
Mr Mike
WM age 69, Stage III sqamous cell, base of tongue (left lingual tonsil), (1) node positive, Dxd Aug 2012, 35 rad treat with Cisplatin weekly, final treatment 10-16-12, CT scan 11-18-12 good result, PET in Jan 2013, good result, Barium swallow test...no swallowing function.
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