Mike

Another possibility is VitalStim, which is an FDA approved transcutaneous neuromuscular electrical stimulation device. Not all Speech therapists are trained in it. If you read some recent posts about the PEG tube, you can see that often patients take a year before getting off a feeding tube and learning to swallow real food again, so don't give up hope.
I was lucky the first time around since without a PEG (based on my RO's advice since I had base of tongue cancer also), I never quit swallowing so could eat normally almost right away after TX. But the salvage surgery after the recurrence did a real number on me. Here is a study on VitalStim published at NIH, that indicates it really helps moderate dysphagia but not so much for severe dysphagia. VitalStim Unfortunately, VitalStim did not work for me as the damage to my epiglottis and the constrictor muscles was massive, compounded by a second dose of radiation frying the scar tissue, but it has worked for others. Can't hurt to try. You still do the same exercises with the SLP, but you also swallow water while getting the electrical stimulation to the swallowing muscles. I hope you make progress.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13