 Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Hi Gina. Maybe you could give them the OCF website info and they could find out a little more about this type of cancer.
As a "caregiver" my frustration came from people asking me "how could John get this type of cancer when he eats so healthy, has never smoked a day in his life and only drinks socially?" As if you did smoke, drink heavily and don't take care of yourself it's o.k. to get this cancer or any cancer. I just told everyone "bad luck I guess".
I know it is frustrating but they are probably scared and concerned. My husband's family members dealt with it by NEVER calling, asking any questions or offering any support or help.
Welcome to our little family and feel free to come here and vent anytime. That is what we are here for.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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