Hi, Gina
as a sincere and loving young person, you are doing your best to give fair and honest answers to difficult and personal questions. As a cynical old writer, here are my suggestions:
1. As other have suggested, take control of the communication via a blog or e-mail. When people as how you are doing, tell them the next update will be out soon.
2. If they continue to ask questions you would prefer not to answer or are unsure of yourself, you have several choices:
a. The long stare (and no response).
b. "Why do you ask?". I think I read this one in Miss Manners. It dates from the time when manners and courtesey were better appreciated. I have never had the courage to use it.
c. Reply "that's a very good question" and change the subject. If they persist and the question was about cause or prognosis, tell them that the answer is a multi-variable analysis problem. If about prognosis also say you are handling the variable under your control to the best of your ability.
d. Give them the long answer, with too much information. If that doesn't scare them enough to give you a little breathing space, you may have found a true friend to help you on this path, who is loyal to you, and does not wish to leave your side.
One other thing you might think about is a list of tasks that people could help with. My worst fear was getting sick myself and not being able to drive my husband to therapy. I had all sorts of people lines up - who were honestly VERY happy to be able to help. As it turned out, we didn't need the help, but it was wonderful knowing we had so many kind and willing friends.
My very best wishes .... and VENT ON as needed!
Maria
PS. Read Jane Austin for tips on conversation management.
Last edited by Maria; 01-17-2013 12:09 PM.