Its ok to vent, thats what the forum is for... support. We do understand you and what you are going thru as we have been down that road ourselves.

Many patients have used a site called Caring Bridge. They tell everyone to go there for updates. This helps to eliminate what you are experiencing. The only problem with that plan is many feel they dont fall into the "caring Bridge" status as they are closer to the patient than that (sister in law, cousin, etc). If you or your husband plan on doing the Caring Bridge, you can tell everyone as much or as little info as you deem necessary. By doing a blog, you can control how much info you put out and who gets it. It also helps to get things off your chest.

Ive always said to members, it really doesnt matter how you got it, the treatment will be the same. Down the road it could be different but for now its the same. If you are HPV+ down 'there' that doesnt necessarily mean that has anything to do with your oral cancer, especially since it isnt located on the base of tongue or tonsils. Many people worry that the same thing could happen to them thats why they continue to ask how you got this.





Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile