I think stick with what you find most comfortable but keep trying things periodically to see if there is any improvement. Eventually it will get better. It just seems to take a long time for the healthy mucosal lining to recover. Especially after thrush.

Not wanting to eat was the aspect of recovery that upset me the most. I was quite worried that I would never want to eat again. I dreaded meal times. It felt quite psychological at the time but was based in physical causes. Friends and family would try to help by suggesting things but nothing was right. I always have a reason why I didn't like it so it felt like I was always making excuses! Eating was a chore that had to be attempted, and I worried that I was too dependent on the gastric tube. Then one day I tried some small pieces of marinaded chicken in a tomato sauce and I suddenly realised I was enjoying it. It was such a relief. Unfortunately I haven't been able to recreate the sauce again to quite the same specification! But since then the improvement has been slow but steady. I've only recently started enjoying avocados.

That's great that your Speech therapist is giving you the right support. I also suffer from some trismus, as do a lot of people here. I was annoyed that I was not warned about this so that I could do some stretching during the period I wasn't eating. Of course I hadn't realised there was a problem until the first time I tried eating banana! And that would have been about the same stage as you are at. I haven't been offered the terrabite (I believe they are on prescription here) but tongue depressors are helping. You need to keep doing the stretching regularly.

I know Inverness well, almost had to move there with my job a few years ago which will give you a big clue to who I work for!
Sally


Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.