Hello All,
I am post treatment for BOT dx in Mar this year. Had a spread to node which was removed, then cysplatin chemo x2 and 30 RT treaments. Had a peg line fitted before treatment which I hate but it's kept me alive. Initially I couldn't talk or swallow at all but after about a month (my treatment ended in JUly)I began to be able to swallow a bit. Progressed to soups and ready brek (do you have that in America? It's a fine oat cereal)but I've gone backwards in that it's incredibly painful to swallow. So I pretty much don't except water and 1 small bowl of reday brek a day. Saw my oncologist y/day for a camera down my throat and she said, no ulcers so advised to just get on and try food despite pain. Saw dietician immediately afterwards and she said not to try eating if too sore! I have morphine (oramorph) which I take with regular painkillers but it doesn't help much. I also have a lot of ongoing mucous. Has anyone else gone through this and what do you advise please? Thanks.