Thanks for your reply David. 6 months, what a long time - that can't have been at all easy, makes me feel 'bad' to moan about my situation. I don't know what else is available to me in terms of meds, the one you mention I've not heard of but shall make an appointment with my GP to find out if I can try it if it's available, or if not see what she thinks about changing cos the morphine simply isnt doing it any longer. I suppose I've become too accustomed to it and it's no longer efficacious. Today I got a call from Aberdeen hopsital to say I've to go in for a Pet/Ct scan next week to check for cellular activity. Had one to help dx where my cancer was back in March as originally after finding it in my lymph node they thought it was a primary in my thyroid, then of unknown origin for about 2 months. How did the speech therapist help you David? I'm not at all sure what to expect. Take care.


BOT dx via Pe/CT combined scan Mar2012
Spread to node-removed.
HPV 16 +
Cisplatin x2, RT x30 June & July 2012.
Peg in situ 06 2012 & 1 tooth out.
Visual scope clear Oct 2012
Veggie, never smoked or drink much (polish halo!), no caregiver. Aged 58, Lynne in Scotland