Hi Lynne,
The mouthwash Kevin used says...C-Lidocaine/Diphen/Anta. Not sure what the 2nd and third words stand for. I am getting this off the bottle because I have saved it for sore throats!! It's good stuff!
The term is False Positive, not false negative. It means it shows a positive uptake and there really isn't anything bad, just inflammation. The false negative would mean it didn't show anything but there really was something. DON'T want that for sure.
IF the scan comes back with an uptake they will do more research. Maybe another biopsy, maybe an MRI. They have to follow protocol as if it is bad until they know it is not. On this site we try to go with staying calm until the biopsy is back and they say FOR SURE it's bad. NOT an easy thing to do. As I said, we went through it in March and it was terrifying for a couple days.
We have another next Tuesday. Will try to remain a little calmer this time!! TRY is the key word.
I hope the gal you gave the info to signs on. It is such a lonely place to be. I did not find this site until almost the end of Kevin's tx and by then I was a nut case!! I found so much peace here.
Glad you are with us!!
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14