| | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 Likes: 1 | Lynne, I'm sorry to read about all you're going through. I too did it basically by myself albeit in the midst of a huge city. It's not easy, but you have all of us here now to help.
Everyone has given you great advice. I've heard that swallowing can indeed become a lost art if not kept up, unfortunately, but I'll let those you know about this subject comment.
How well I relate to the pain of swallowing. Sometimes it was just about unbearable, and like most people I lost a bunch of weight during treatment. But the sores will heal. Do you have access to viscous lidocaine? I found it was the only thing that gave me even a modicum of relief, albeit mainly for sores in the mouth and not down the throat. But you might ask your team about it because it can't hurt.
I too am a vegetarian. But unlike you I have a huge sweet tooth. I can certainly relate to wanting some foods and not being able to even think about others. I basically didn't eat anything solid for 6 months beginning about the second week of rads, and I consider myself to have had it easy.
Keep us posted. Keep trying to swallow, even if it's just water. Also let us know how things went with the speech therapist. I found that it helped me quite a bit.
My thoughts are with you.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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Entire Thread
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First post, advice on pain when swallowing
| Lynne B | 09-29-2012 05:36 PM |
Re: First post, advice on pain when swallowing
| lynney0814 | 09-29-2012 11:47 PM |
Re: First post, advice on pain when swallowing
| ChristineB | 09-29-2012 11:49 PM |
Re: First post, advice on pain when swallowing
| Garrett | 09-30-2012 01:49 PM |
Re: First post, advice on pain when swallowing
| ChristineB | 09-30-2012 03:00 PM |
Re: First post, advice on pain when swallowing
| Lynne B | 10-01-2012 04:09 PM |
Re: First post, advice on pain when swallowing
| Lynne B | 10-01-2012 04:39 PM |
Re: First post, advice on pain when swallowing
| David2 | 10-02-2012 06:43 PM |
Re: First post, advice on pain when swallowing
| Lynne B | 10-02-2012 10:53 PM |
Re: First post, advice on pain when swallowing
| KP5 | 10-03-2012 01:58 AM |
Re: First post, advice on pain when swallowing
| David2 | 10-03-2012 02:54 PM |
Re: First post, advice on pain when swallowing
| Lynne B | 10-03-2012 11:14 PM |
Re: First post, advice on pain when swallowing
| TimD | 10-04-2012 01:21 PM |
Re: First post, advice on pain when swallowing
| KP5 | 10-04-2012 04:48 PM |
Re: First post, advice on pain when swallowing
| saxicola | 10-04-2012 06:48 PM |
Re: First post, advice on pain when swallowing
| Lynne B | 10-08-2012 02:12 PM |
Re: First post, advice on pain when swallowing
| saxicola | 10-08-2012 08:52 PM | |
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