Thanks for the info Kathy and David. Interesting to hear what you say about possible false negatives from what may be a scan too soon. Ummm, don't my team up here know about this??
The info on magic mouthwash is useful but what's it's generic name please anyone?? It sounds like a cousin of magic mushrooms!! I've got a replacement saliva spray , not sure what it's called, I'm just ready to crawl into bed, so will investigate another day. However I've hardly used it as I've not really been eating since I had it..time will tell if it's any good for me but it's certainly very useful to get names of other meds that people have found helpful to ask about. I will try the baking soda meanwhile.
Can anyone tell me what the difference is between a quick reply and a reply? Not sure if this will post in the same way..I'm not a user of forums so am having to learn all this as I go along here.
I'm giving this site web address to another lady over on the west coast whose oesophagus has closed over, she texted me today after a long gap as she's been having various ops to try and get a tube in to allow future stretching but the op's been unsucessful, so she's fairly despondant. I hope she'll have a look see - I told her how friendly and helpful and balanced this site is. I know myself I've felt so alone and cut off and I think she's in a worse mental state than me, so I do hope she has a look. Personnaly I find I don't want to socalise much as I feel the spitting and coughing is a problem and perhaps if I'm really thinking about it, I feel safe at home in my little cocoon world and routines just at present.
Night all,
Lynne


BOT dx via Pe/CT combined scan Mar2012
Spread to node-removed.
HPV 16 +
Cisplatin x2, RT x30 June & July 2012.
Peg in situ 06 2012 & 1 tooth out.
Visual scope clear Oct 2012
Veggie, never smoked or drink much (polish halo!), no caregiver. Aged 58, Lynne in Scotland