P.S to my post a few minutes ago! Just wanted to say that during treatment, which was so harsh, I had to be taken into hospital for 25 days as I felt so ill, like a lot of people here I now realise. I felt so alone, not having met or talked to anyone else going through the same or similar thing. We have a support service here called Macmillan and I asked if they could put me in touch with someone else going through this and there was a lady who was a few weeks in front of me, just back home who, like me had terrible problems with mucous and swallowing. I did text her for a while but she's hit hard times and can't even swallow water now and has stopped texting me. Last I heard she's back for an operation as her oesophagus has fused or something and that's why she can't swallow. Can you lose your swallow even if you have it ok for swallowing water, or do you need to swallow solids to keep the ability for the future to swallow 'normally' again??


BOT dx via Pe/CT combined scan Mar2012
Spread to node-removed.
HPV 16 +
Cisplatin x2, RT x30 June & July 2012.
Peg in situ 06 2012 & 1 tooth out.
Visual scope clear Oct 2012
Veggie, never smoked or drink much (polish halo!), no caregiver. Aged 58, Lynne in Scotland