Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | I checked the timeline Journal I kept for John. One month out of treatment he wasn't getting any nutrition by mouth it was all through the PEG. He was drinking water every day and the mucus was still pretty bad. The following is from the journal:
June 10, 2009 � I can�t believe it has been a month since I wrote anything in this journal. John is 8 weeks out of treatments today. John is continuing his slow recovery but doing (I think) a lot better. John is finally talking again, YEAH! I really missed being able to have �conversations� with him. His voice is weak but getting better each day. Thank God the debilitating mucus has for the most part gone. He is no longer taking the Zofran for the nausea.
I remember John having a couple of sores on his tongue that seem to take a while to heal. John had zero appetite for a while after treatments ended.
Please don't take this personally as I know you are ANGRY and frustrated. As a caregiver who worries about recurrence and losing their husband to cancer I find it offensive when you make statements that your quality of life is zero. A lot of us have lost friends over the years to this cancer and I'm sure those people would trade places with you in a minute just to be here.
Lets face it we are all on borrowed time - cancer or no cancer and all we can do is deal with the hand we are dealt and make the most of each day.
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
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