Ive been done with radiation for a month and I still can't eat anything other than boost shakes with benecalorie. While I'm not looking for nutritional suggestions I am seeking details. Constantly someone will reply to someone's topic, answer but leave out the details that make their answer comforting to the person who posted it.
Why, exactly couldn't you eat post radiation?
How long before you were able to eat normally again?
What was the process like and how did you get back to solid foods? Did you work up to it or wake up one day and could eat again?
I KNOW everyone is different but the absolute worst part of all this is the not knowing which makes comfort in the details.
Right now I have 2 issues going on (besides the fact I can't speak because of the amount of thick salvia). The first is kind of hard to describe and if anyone has had anything like this happen to them post radiation please share your details with me. At first I thought my tongue was getting stuck to the roof of my mouth and in my sleep I was ripping it off but now I kind of think I may be sucking hard on my tongue to the point of me waking up. I am not sure which but this makes the top of my tongue unable to tolerate the touch of anything. The top of my tongue is raw
I'm also dealing with my tongue seeming to have no clue what to do with the food once it is in my mouth.
I tried a piece of pizza last night out of desperation and besides the fact it tastes completely different then how it use to it was do hard to manipulate.
Just tell me now if boost is all I have in my future. I'm beginning to come to terms with the fact that my quality of life is zero.