Hi John of arc,
After we have been through so much we want everything to go back to normal right now. I still am on a peg tube in which they told me 2 months ago I would never eat again. I paniced and started to do a bunch of research. I was able to get another opinion outside my hmo who worked with my ENT and found another option for me. I just had botox shot into what they call bars (muscles that are hard as rock is the best way to explain it). This is day 3 and I can swallow water much easier, but I do understand I have to keep doing my swallow excersies provided by my speech therapist and this could take a couple of months to actually eat. It has been over year since I have been able to eat, but I use this site and have a lot of people to support me to keep me going. There have been days I wish I could just give up but realizing that it would be selfish of me due to all of the people who have supported me. Please just take time to heal and know you will be able to eat and listen to these peoples stories to give you hope.


10/10 IV OSCC metastatic to lymph nodes. 10/10 Peg,Port,Trech. due to rad scarring cannot swallow. 9/12 Pet clean. SCC back again 11/12. Tumor attached to jugular, Rad DX left side of neck 11/19/12. No Chemo or Rads. MRI on 1/11/13 for chronic pain w/pet scan 2/15/13.