Hi, Steve.
I'm just reading all of the posts on this thread. I hope you are resting comfortably as I type this. I think you made the right decision to fight. There are many people here rooting for you. Your life will be worth living!
My father lost his vision completely, due to diabetes. I was very young when this all happened, but I do remember times when my father had sight. He was completely blind by the time he was in his mid-to-late 30s. I can only try to imagine how incredibly hard it was for him and the rest of the family. He was a skilled printer by trade and loved cars and working with his hands. He lived a fulfilling life for many years after he lost his sight. It wasn't easy, but he enjoyed his family and friends. He had to leave his career as a printer, but he was able to work. It wasn't what he was doing for work that mattered, but he got out of the house and socialized with people and made friends.
I am confident that you will find your own way. I wish and hope that you can look forward to a cure and go on living with your new normal. Best wishes for a full and speedy recovery. Please keep us posted as you are able.
With great care,
Kerri