Hi Steve,
I guess I look at it this way...if you don't do it you won't be able to breathe soon much less speak. If you do it you know there is a CHANCE you will be able to speak again eventually, and breathing will continue. It is wonderful that you have a doc that wants to get right on it.
That being said, we have had the discussion several times that if a recurrence happens in our house and Kevin has to have the big surgery and never eat or drink again like Charm talks about, he might not do it. It is a personal decision and we are here for you no matter what you decide. There are folks like Charm Christine and Eric that are pounding the pavement and are truly our heros, but Kevin just doesn't know if he could be them. I have to accept that it's him living it, not me. Although you know I would be living every moment right by his side.
I don't know...keep us posted!!
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14