OP Contributing Member (25+ posts) Joined: Feb 2011 Posts: 45 | Ok guys I really need some TLC on this. It took over a week for the path report to come back,I got news this morning it is a rare form of cancer Spindle Cell Carcenoma I see the ENT Tuesday to talk about options. I had 32 TOMO rad last year so I am probably not a candidate for more Rad. I turn 65 next month and if I were in my 40's there would be no doubt I would fight this. I am so close to giving up it scares me. I sell equipment for a living and I am just now recovering somewhat financially from the mega loss of last 4 years. You have all inspired me but I have never talked to anyone that has lost his or her Larynx. Will I ever be able to talk on the phone? If I were not in sales the decision would not be so traumatic. How will potential customers be willing to deal with me if at all. The doctors are so black and white. To them it is a no decision. When does quality of life ongoing simply outweigh the individual price one must pay to go on? I need to talk to someone that has been somewhat in my situation. I watch You Tube videos and I am more confused then before. Friends are giving me information on new treatments that they have heard about. One friend told me to explore Supracrcoid Larymectomy. Another friend told me to explore burzynski in Texas that has great success with a new cancer treatment that attacks the cancer cells. I need to take a couple of days to process most of this. One thing I know is I do not have alot of time to sit on the fence I know many of you have been here and you are my only support group that understands where I am in this point of my journey. I promise, I will not give-up the fight until I explore all options. This may not even be the right forum to air my feelings. Thanks Steve Hurlock
SCC of larynx,2/1/2011 surgery 16 times to remove papilloma on vocal cords,started TOMO rad treatment 4/11.2011 T2N0M0 possible invasion onto cartilage tissue Cancer back 6/2012. Polyp removed Came back spindle cell carcenoma 6/22/12
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