Thanks, Charm, for the references�finally tracked it down. I was able to get at least to the abstracts of the studies referenced by Dr. Jimeno. Am still digesting those, as I have to filter through the medical jargon to get the gist of what I can understand!!

Yes, Kathy, I refer to my RO only because we have not been able to get in touch with the MO to meet with him yet! We and the RO�s staff have been calling them to try to set up an appointment. Maybe he will give us a different opinion on the PEG or feeding tube. I certainly will keep your advice in mind.

It also helps to hear you-all think Dr. Gillison is top notch and that a study with her name on it should be �what�s the word�not safe, but with good chance of a good outcome. My husband went over and signed the papers today to enroll in the trial, after much deliberation. I think we are both comfortable as we can be with the decision.

Thank you again for the input.


Caregiver & Wife to Husband age 61 Dx 06/08/12
Stage IV BOT Cancer T3N2cM0
Non-smoker, light drinker
Tx ended 8/27/12. 35 doses rad + 2 Cisplatin doses 3 weeks apart. PET/CT scan 10/24/12 - NED BOT. 2 small hot spots, one one on each side in lymph nodes deemed to be result of Tx at this point.