Duffy
Yes, Something I can support your RO and husband on 100%
I was so focused on the
Erbitux, I missed the line in your post that your RO was exactly like my RO on the Peg.
The apparently innocent question by a new poster:
"Should I get a PEG" set off two (three?) major "PEG wars" here on OCF in the past. No surprise that I was not only a fiery combatant but also poured gasoline onto the blaze, as I responded tit for tat to the pegophiles.
After rational discussion set in, it turned out that almost everyone involved was echoing the perspective of their RO.
Some poster's ROs made PEGs mandatory, most poster's ROs just urged it strongly, and a minority had ROs like mine and your husband whose standard was no PEG until and unless necessary. Amazing how each subset of patients conformed to their RO's expectations in how they fared
For what it's worth, I had no PEG and never once needed hydration nor any IVs nor did I have any adverse complications. A year after TX I took my wife on a Victory (in hindsight a little premature) tour of Rome & Venice and I ate every type of delicious Italian food with no problems nor restrictions on it being "easy" or "soft".
We've had peace on the forum with a consensus that getting a PEG is a personal decision for each patient with no right or wrong answer .
Now that I am on lifetime feeding tube, my feeling is that unless the patient has strong psychological motivation to avoid a PEG, with the concomitant psychological boost when he/she gets thru without one, and the support of their RO, it is clearly easier to get a PEG since you can always get swallowing therapy afterwards if the PEG does cause swallowing problems.
Charm