Hi Duffymo,
Our route was the Cistplatin as you can see in my signature, but he also had 5FU and Taxotere as well as 60 IMRT. We are now 8 months out and still clear. Kevin is eating what he wants and feeling pretty good. He did lose 56 pounds and has not put any back on. If he gains a few pounds and mows the lawn, he loses it. He still loses weight easily so really has to keep up the calories. He did not get too sick either. Yes he vomited, but not on a regular basis.
Have they talked about a PEG tube? Really something to consider. Kevin didn't use his too much because he HATED it, but many people need it and use it regularly. The most important thing is to keep up hydration and nutrition. Invest in Ensure or one of the like meal replacements. Kevin lived on those for quite some time as well as scrambled eggs. Water is a must. I think Christine tells everyone to shoot for 48 oz a day.
The only problem Kevin had with the Cistplatin is a constant ringing in his ears. He had this prior to tx too, but it is much worse now. It definitely affected his hearing. Would we do it again, yes. The nodes involved responded within days of the first dose. He had the 3 chemos every 3 weeks instead of once a week.
You have found a wonderful support system here with us. We are family and have been through it all together. Please keep in touch with us as you begin the journey. It is a rough trip, but you WILL come out ok. BOT HPV+ has a pretty positive outcome. At least that's what we have been told and are counting on!! ;o)
Feel free to personal message me if you want.
Blessings,
Kathy