OP "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Absolutely - sorry for my spelling errors in previous posts - first off went for a nice walk last night with my daughter I took her for food and we went to the gift shop and pharmacy I had my feeds pole with me and looked scary but we were out for about an hour. Today they capped my trache - removed my regular feeds and are bolusing me so I am pretty mobile. The Aldo removed my final drain. I'm taking Tylenol 3 at bed time cuz I'm a little stiff! But other than that and my nasty trache - which may come out tomorrow - I am relatively comfortable - the swelling in my tongue is going down - I can swallow - but I still sound like I am talking though a mouthful of marbles!!! If the trache comes out tomorrow I may get clear liquids! Yes!!!!! I had a student nurse today which was fun - I think she was first year - learning basic care - so I only saw my regular nurse 3 times!!!! It was the one from my first day post op - the one who waited 7 hours to change a faulty foley - last nights nurse was fantastic - she did all the care she was supposed to do - so far she is the only one who has! When I am released I will definitely report to patient survices and the patient advocacy department! I just think there should be a standard in ace for the first two days you are incapacitated - if you can speak and barely breath here should be something set up and extra precaution - I know it makes for a heavy parent but nurses here get paid upwards of 35 an hour - If you are getting paid the much - be on the ball - be compassionate - and don't be frigging lazy! They just don't listen here !! Hope you all are doing well !!!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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