Cheryl, I'm so sorry that you are being treated so shitty. I work at a hospital (secretary), every hospital has a Patient Advocate. Get your husband to get that person involved IMMEDIATELY! No one should be treated as you are being treated. I can't imagine how panicky it must feel to be ignored by the people who are supposed to be taking care of you. No hospital likes to get bad patient satisfaction reports. Go above the nursing dept. and get administration involved. We've had patient's families at the hospital I work at directly call the Vice President of the hospitals' office. I'm so sorry you are going through this.

My mom had the "whipple" surgery at Johns Hopkins in Baltimore for pancreatic cancer. She had the top surgeon in the country but the nursing care was horrible. We stayed with her round the clock or she might not have made it out of there alive. It was really bad. I will continue to pray that things get better for you. Wanda

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2