Im so sorry you are having difficulties. Nobody likes being in the hospital and not being taken care of properly. I wish there was something I could do to help you but over the computer its impossible.

If you are experiencing so many problems with your attendants, you need to speak up and advocate for yourself. Do you have any friends or family members with you? If not, then ask for a supervisor and let them know everything you have mentioned in your post. Thats the only way to get the help you need.

Hope things get better for you!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile