Supporting Member (50+ posts) Joined: Sep 2009 Posts: 96 | Oh my gosh. I am so sorry you are having to deal with all that. I agree that you need to get people involved over their heads. And the next time you see your doctor/surgeon you need to tell them everything that has happened. Believe me they have a pretty big say in stuff. And KEEP sticking up for yourself. I know it's hard with the trach. You might keep a sign like NO!!!! or GET THE DOCTOR NOW!!! on one page sheets to hold up when you aren't getting the point across. It's nicer than hitting them ;-)
I will pray that you are able to get some help and that they are able to get the doctor to figure out what is wrong.
31 at dx 9/06 SCC T4N0M0 with bone invasion upper maxillary Surgery 10/06 CT's clear for 2 years 2nd recurrence - Laser surgery 1/09 dx Tumor board - No surgery to invasive for QOL 35 IMRT 3/30/09 Completed 5/15/09 8 tx Erbitux 3/24/09 Completed 5/6/09 HBO for ORN March & April 2010 Fibula flap 5/10
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