 "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | OMG Cheryl!! What a nightmare. You need to have someone there with you to ADVOCATE for you. Write down what is wrong/needed and give it to your advocate and have them stay on it until it is fixed!! I have been where you are.
Explain to them that you are in pain, concerned for your safety, and ask them to put themselves in your powerless position!
Perhaps your personal advocate can find the patient advocate or you can show your list of concerns/desires to one of the doctors on their rounds? Sometimes an intern/resident will be more ACTION ORIENTED than the 'been there done that" balance of the staff.
Hoping to hear better news soon.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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