Hi Nate's Mom - I am just so glad to see you here! We all care so much about Nate and his family. You have some important and good advice above. It's a good idea to keep records of everything he takes in - meds, liquids, solids as well as what goes out since constipation is a possibility. There are meds for that which my son had to take. I made a chart of all the meds, what they were, and the recommended dosage so I could make sure Paul took them when he was supposed to. He was so sleepy and groggy most of the time and at one point, was taking way too much ibuprofen for pain on top of other meds. I made a copy of the meds chart and stuck it on the refrigerator for him to check off when he took something and told him he had to stick to it. The chart I made also had a section for doctors' phone numbers and contact person at the different offices in case I had to call about anything. Having the PEG installed should help a lot with his nutritional needs. Nate is young and he will make it through the rough days. I know this has to be rough on you, too. Stay in touch and keep us updated on how you both are doing.