Please understand that the 2 to 3 weeks after treatment ends is usually the worst time for all of us. I just don't want anyone to let him think the day treatment ends he will start to get better because he won't until that period also runs.

My problems also started after my 2nd Cisplatin so it's also important IMO that he understands that while he feels like crap, this is NORMAL. Everyone gets like this but we all finally walk out of that dark tunnel and recover.

Also make sure that he gets at least 2500 cals and 48ozs of water each and every day. Also get him to continue to use his swallowing muscles every day as they can quickly "forget" how to work which can lead to post Tx swallowing difficulties that some never recover from.

This is a time that other complications can pop up like dehydration and constipation. A simple test of pulling the skin on the top of his hand can help determine dehydration. If you pull a pinched piece of skin up and it stays up, he's most likely dehydrated and he needs fluids ASAP.

Stay on top of the pain. Some pain pills work for some but not everyone so if something doesn't work try another family.

If he doesn't want to seek our advice please be the go between as the the next few weeks are critical as far as info that he and his caregiver could use and most importantly we can supply.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.