Glad there is a link to Nate on the boards...I was really worried about him. :o( I know it was just the really crappy feelings that got him down but wasn't sure if he would read what was written so he knew this was normal!

I did just post to his facebook that fresh, from scratch tapioca pudding is heavenly! I had been craving it, hoping the neighbor would make me some (she has before) so I finally made it myself. The double batch may be gone before I get it refrigerated! If he likes tapioca it would be good later when the mucous is better.

By the way, I am Michele that was "going through" this with him at the same time. I felt terrible that he was having it SO bad and I was doing pretty well but I didn't have the Chemo - just radiation. Been also talking to another lady that had the free flap on her tongue AFTER she finished radiation of her female parts, and now needs radiation and chemo on her mouth. They had put the feeding tube in and now it is infected...so there are lots in much worse shape as well...but when you feel bad...you feel BAD!

Tell him he is welcome back when ever he is up to it...I think we all know it is the "cure" talking...not him.

I am down to 2 more general treatments and then my 5 localized and I will be done. I had an easy week 1 and 2 but week 3 hit my and I felt like Nathan. I didn't know why I did this, didn't think I would make it through, had mouth sores, couldn't hardly eat or drink, etc. The next week got better, especially with the 4 days off for holiday and this week was long (another 5 day treatment week) but I made it, and the next 2 weeks should be easy enough - if I keep my eye on the prize! Give him a big hug from us. :o)

Michele in IL

Last edited by Michele57; 12-03-2010 06:11 PM.

Female - 53 no smoke/drink
tongue Biopsy 8/2010
Surgery 9/21 for SCC left side tongue stage II. Prtl removal tongue/left side lymph nodes. All Clear
Radiation started 11/2, ended 12/17
Lymph node involved left side along with gum involvement 2/9 Fibular flap failed 2/22.
passed away 1/12/12