| Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2009 Posts: 329 | Scott,
You have the best of the best on this forum, very informative. I would really get another opinion from a Cancer Center even if you have to take out a loan. This is your mouth, speaking and eating you are your own best advocate.
Some of us have horror stories before going to a Cancer Center. I'm going to give you a quick horror story of mine before I went to a Cancer Center. My tumor was 1.3 cm when I had surgery started out the size of a pencil eraser. I went to an ENT he told me he would teether my tongue, I would have a peg tube to eat and my tongue might hang out the side of my mouth and I would probably drool. Good Grief!!!
I went to a Cancer Center a month later long story how I got there....I told them what was said, they looked at me in disbelief. I had the surgery at the Cancer Center and all of the above I was told by an ENT Surgeon did NOT happen.
Get another opinion from a Cancer Center and if they tell you what the first doctor told you then you won't wonder afterwards.
Their Tumor Board meets once a month I would have a problem with that. My CC's Tumor Board meets once a week.
Also, I didn't know the things I know now if it wasn't for the people on this forum I would be...who knows where.
I hope I'm not out of line, but what made me comment your Tumor Board meets once a month.
Take care and I hope all goes well for you.
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2. Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
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I left my heart (okay, tongue) in San Francisco
| scott lawrence | 08-25-2010 12:28 AM |
Re: I left my heart (okay, tongue) in San Francisco
| Charm2017 | 08-25-2010 12:37 AM |
Re: I left my heart (okay, tongue) in San Francisco
| Leslie B | 08-25-2010 01:01 AM |
Re: I left my heart (okay, tongue) in San Francisco
| misskate | 08-25-2010 01:09 AM |
Re: I left my heart (okay, tongue) in San Francisco
| Brian Hill | 08-25-2010 01:43 AM |
Re: I left my heart (okay, tongue) in San Francisco
| ChristineB | 08-25-2010 02:27 AM |
Re: I left my heart (okay, tongue) in San Francisco
| SusanW | 08-25-2010 04:10 AM |
Re: I left my heart (okay, tongue) in San Francisco
| davidcpa | 08-25-2010 12:07 PM |
Re: I left my heart (okay, tongue) in San Francisco
| scott lawrence | 08-25-2010 11:48 PM |
Re: I left my heart (okay, tongue) in San Francisco
| Brian Hill | 08-26-2010 04:40 AM |
Re: I left my heart (okay, tongue) in San Francisco
| davidcpa | 08-26-2010 12:04 PM |
Re: I left my heart (okay, tongue) in San Francisco
| wendys | 08-26-2010 12:40 PM |
Re: I left my heart (okay, tongue) in San Francisco
| Uptownsgirl | 08-27-2010 07:32 PM |
Re: I left my heart (okay, tongue) in San Francisco
| scott lawrence | 08-28-2010 04:21 PM |
Re: I left my heart (okay, tongue) in San Francisco
| ConnieFL | 08-28-2010 05:04 PM |
Re: I left my heart (okay, tongue) in San Francisco
| penners | 08-29-2010 04:04 AM |
Re: I left my heart (okay, tongue) in San Francisco
| ChristineB | 08-29-2010 04:18 AM |
Re: I left my heart (okay, tongue) in San Francisco
| ConnieFL | 08-29-2010 11:53 AM |
Re: I left my heart (okay, tongue) in San Francisco
| EmilyE | 08-29-2010 01:38 PM |
Re: I left my heart (okay, tongue) in San Francisco
| debandbill | 08-29-2010 04:09 PM |
Re: I left my heart (okay, tongue) in San Francisco
| misskate | 08-29-2010 05:41 PM |
Re: I left my heart (okay, tongue) in San Francisco
| davidcpa | 08-30-2010 12:10 PM |
Re: I left my heart (okay, tongue) in San Francisco
| Suess57 | 09-05-2010 01:48 AM |
UPDATED! I left my heart (okay, tongue) in SF
| scott lawrence | 09-27-2010 04:51 PM |
Re: UPDATED! I left my heart (okay, tongue) in SF
| ChristineB | 09-27-2010 05:33 PM |
Re: UPDATED! I left my heart (okay, tongue) in SF
| rossnz | 09-28-2010 04:19 AM |
Re: I left my heart (okay, tongue) in San Francisco
| bethers0808 | 09-07-2010 07:55 AM | |
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