| Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 66 | I would HIGHLY recommend a consultation at UCSF which is an excellent H&N treatment facility and getting an opinion from a tumor board there, that is made of of doctors from all disciplines, not just surgery. There are a bunch of ways to skin this cat, and initial treatment with radiation and chemo could eliminate this or at least partially reduce it to a size where you would not lose 2/3rds of your tongue, which will have significant quality of life issues afterwards. You need to take a few extra days RIGHT now to get that tumor board opinion of treatment possibilities.
Surgeons are very important parts of the oral cancer treatment process. But in determining possibilities... if all you have is a hammer, everything looks like a nail.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
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I left my heart (okay, tongue) in San Francisco
| scott lawrence | 08-25-2010 12:28 AM |
Re: I left my heart (okay, tongue) in San Francisco
| Charm2017 | 08-25-2010 12:37 AM |
Re: I left my heart (okay, tongue) in San Francisco
| Leslie B | 08-25-2010 01:01 AM |
Re: I left my heart (okay, tongue) in San Francisco
| misskate | 08-25-2010 01:09 AM |
Re: I left my heart (okay, tongue) in San Francisco
| Brian Hill | 08-25-2010 01:43 AM |
Re: I left my heart (okay, tongue) in San Francisco
| ChristineB | 08-25-2010 02:27 AM |
Re: I left my heart (okay, tongue) in San Francisco
| SusanW | 08-25-2010 04:10 AM |
Re: I left my heart (okay, tongue) in San Francisco
| davidcpa | 08-25-2010 12:07 PM |
Re: I left my heart (okay, tongue) in San Francisco
| scott lawrence | 08-25-2010 11:48 PM |
Re: I left my heart (okay, tongue) in San Francisco
| Brian Hill | 08-26-2010 04:40 AM |
Re: I left my heart (okay, tongue) in San Francisco
| davidcpa | 08-26-2010 12:04 PM |
Re: I left my heart (okay, tongue) in San Francisco
| wendys | 08-26-2010 12:40 PM |
Re: I left my heart (okay, tongue) in San Francisco
| Uptownsgirl | 08-27-2010 07:32 PM |
Re: I left my heart (okay, tongue) in San Francisco
| scott lawrence | 08-28-2010 04:21 PM |
Re: I left my heart (okay, tongue) in San Francisco
| ConnieFL | 08-28-2010 05:04 PM |
Re: I left my heart (okay, tongue) in San Francisco
| penners | 08-29-2010 04:04 AM |
Re: I left my heart (okay, tongue) in San Francisco
| ChristineB | 08-29-2010 04:18 AM |
Re: I left my heart (okay, tongue) in San Francisco
| ConnieFL | 08-29-2010 11:53 AM |
Re: I left my heart (okay, tongue) in San Francisco
| EmilyE | 08-29-2010 01:38 PM |
Re: I left my heart (okay, tongue) in San Francisco
| debandbill | 08-29-2010 04:09 PM |
Re: I left my heart (okay, tongue) in San Francisco
| misskate | 08-29-2010 05:41 PM |
Re: I left my heart (okay, tongue) in San Francisco
| davidcpa | 08-30-2010 12:10 PM |
Re: I left my heart (okay, tongue) in San Francisco
| Suess57 | 09-05-2010 01:48 AM |
UPDATED! I left my heart (okay, tongue) in SF
| scott lawrence | 09-27-2010 04:51 PM |
Re: UPDATED! I left my heart (okay, tongue) in SF
| ChristineB | 09-27-2010 05:33 PM |
Re: UPDATED! I left my heart (okay, tongue) in SF
| rossnz | 09-28-2010 04:19 AM |
Re: I left my heart (okay, tongue) in San Francisco
| bethers0808 | 09-07-2010 07:55 AM | |
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